We want to learn more about social and emotional well-being in children and young people with and without neurodevelopmental conditions. We particularly want to understand behaviour, social functioning and emotional well-being, as well as support the development of measures suitable for those in non-verbal populations and those with intellectual disability. Our research will involve fun tasks and activities that that demonstrate a person's behaviours and social skills and we will use eye tracking to, which will involve looking at some photographs of people on a computer. Parents/carers will be asked to fill out some questionnaires and complete an interview over the phone. Overall, the whole study will take 2-3 hours to complete and can be conducted over multiple sessions. We are looking for children and young people with Cornelia de Lange Syndrome aged 5-30-years-old to take part, and autistic and non-autistic children and young people aged 5-15-years-old. We are happy to travel to visit you in your hometown or you can visit us at the University of Surrey. It is hoped this research will lead to improved understanding of social functioning and emotional well-being in children and young people and greater support for individuals and their families.

 

If you are interested, have any questions, or would like to discuss the study in more detail, please do not hesitate to contact Beth Jones at b.l.jones@surrey.ac.uk . This research is funded by the CdLS Foundation UK and Ireland and The Faculty of Medical Health Science at the University of Surrey.